...Starting with my day-80 post-transplant bone marrow test and spinal tap tomorrow. This is the last time they are scheduled to do these tests before releasing me from the transplant team - what a relief - they are not fun. Then, on Wednesday I have Xrays, dental exam, blood tests, Dr. meeting, and a Long-term Departure orientation class. Friday; med-photo's, CT scan, more blood tests. I am both excited and nervous about this week. While they are tests that are signifying the end of the transplant process, they are also tests where the doctors are checking very close for anything abnormal.
Currently, in addtion to my other 13 daily meds, I am still on the high-dose steroids (70 mg of prednisone/day) because they are still trying to get my GVHD skin rash completely under control. Last Friday, they also started me on another drug (Mylophenolate) to control the skin rash which doesn't have as bad of side effects as prednisone. So, the plan is to hopefully start to taper the prednisone this week.
The rash is getting better and and I just feel great. Toshiko and I were able to go to a friends birthday party Friday and also my company Christmas party Saturday night. We had a wonderful time. It was great seeing and talking with all of my friends there. It was a bit emotional for me as it has been almost exactly one year since my diagnosis and it just felt great to be among friends and feeling somewhat "normal" again after such a very long, very tough year.